Recently Julie Rems-Smario, current CAD President, sent a letter listed below to Patrick O'Donnell, chair of the Appropriations Committee, urging him to support SB 210. Please show your support by sending an email to Misty.firstname.lastname@example.org. Please send your email today!
RE: SB 210 (Galgiani): Special Education: Deaf and Hard-of-Hearing: Language Milestones – SUPPORT, as amended
Honorable Assembly Patrick O’Donnell State Capitol P.O. Box 942849 Room 4166 Sacramento, California 94249-0070
Dear Honorable Assembly Patrick O’Donnell, Chair of Appropriations,
As you know, SB 210 passed the Senate floor earlier this summer. On behalf of the California Association of the Deaf (CAD), a statewide advocacy organization serving Deaf and Hard of Hearing individuals of California, we are proud to be one of the sponsors of SB 210, as amended. I urge you to lend support to SB 210 and vote for it.
We support SB 210 because, currently, a significant proportion of approximately 4,000 Deaf children between the ages of 0-5 have minimal to no language instruction and arrive at kindergarten with inadequate and delayed language development. This makes it extremely difficult for them to achieve academic success and social and emotional growth. It is time to end this tragic statewide epidemic with accountability.
SB 210 enforces language milestones in ASL and English during each Deaf and Hard of Hearing child’s first five years to ensure they are on track to be acadmically and socially ready for Kindergarten. We all support this bill because we want children to be academically and socially ready for Kindergarten at the age of five.
Deaf children have the same capability for learning language as their hearing peers BUT they must be provided the support and access they need during the critical period for language development and that takes place from infancy through early childhood. The delays caused by language are, unfortunately, a common problem that is not addressed by the various professionals working with Deaf and hard of hearing infants, toddlers, preschoolers, and their families.
Language acquisition is a basic human right to ensure that all Deaf babies and toddlers have full access to acquiring a language and experience the same milestones as their hearing peers. It is a very basic human right taken for granted by those with full access to language.
Please support SB 210 and provide a healthy access to language development to all Deaf children in California. This bill will save lives.
2) CAD sample letter to send to Assembly Education Committee
3) List of Assembly Education Committee members' contact info
CAD Logo- Light blue Circle with dark blue letters CAD inside. Outside of the logo, black letters: "California Association of the Deaf 1906” The subtitles below CAD logo says “CAD’s Update about SB 210 President Julie Rems-Smario"
Julie Rems-Smario appears with title below "SB 210 Update- Assembly Education Committee (she is a white woman with short light brown hair and brown eyes. She is wearing a black blouse with silver earrings and a silver necklace with red beads and a silver pendant with the design of the sun and the moon. She has a silver cuff on her right hand and a black and gray wrist brace on her left hand but the viewing is reversed so it seems like the left hand has the silver cuff and the right hand has the wrist brace. In the background is a white wall with a white pocket door. Behind Julie is an abstract painting with rustic yellow frame.
"Hello! I have the latest update about SB 210. This bill with go to the Assembly Education Committee on Wednesday, July 15th. It is imperative that this Monday & Tuesday, which is July 13th and 14th, CAD needs your support, which is time sensitive. Send emails and/or call to eight members of Assembly Education Committee, seven are Assembly Members and one is their Assembly Education Committee Assistant, and let them know why this bill is important. It will create accountability during the first 5 years of each Deaf child’s life to ensure they have LANGUAGE ACQUISITION. You can make a difference. This bill will be historical… it was passed by both the Senate Education Committee and the Senate Appropriations Committee. Then this bill also passed on the Senate floor with unanimous voting from all 40 State Senators with their full support for this bill. Now this bill is at the Assembly Education Committee. We need your support ASAP which is this Monday and Tuesday. There is a contact information list to reach out to the Assembly Members on the Assembly Education Committee including their email addresses and phone numbers you can use to contact them. The list is posted below this vlog. Additionally, we posted a sample of CAD’s letter that you copy and tweak as your own to send to the Assembly Members. Thank you for your support. You are the reason why SB 210 has gotten this far. It WILL arrive on the Governor’s desk because of YOU! Thank you very much! (Julie uses the “thumb up” sign).
Green background shows up with white letters “#supportSB210 #LEAD-K. It fades into a black background with white banner. The banner has black letters, “www.CAD1906.org, Visit CALIFORNIA ASSOCIATION OF THE DEAF on Facebook"
As you know, SB210 passed the Senate floor. On behalf of the California Association of the Deaf (CAD), I urge you to lend support to SB210 and vote for it.
Basically, SB210 requires the state’s Department of Education to assess, monitor, and track the language development of Deaf and hard of hearing (DHH) children with an IFSP (Individual Family Service Plan) or an IEP (Individual Education Plan). We support SB210 because, currently, a significant proportion of approximately 4,000 Deaf children between of the ages of 0-5 have minimal to no language instruction and arrive at kindergarten with inadequate and delayed language development. This makes it extremely difficult for them to achieve academic success and social and emotional growth. It is time to end this tragic statewide epidemic with accountability.
SB210 enforces language benchmarks in ASL and English during each Deaf and Hard of Hearing child’s first five years to ensure they are on track to be academically and socially ready for Kindergarten. We all support this bill because we want children to be academically and socially ready for Kindergarten at the age of five. Deaf children have the same capability for learning language as their hearing peers BUT they must be provided the support and access they need during the critical period for language development that takes place from infancy through early childhood.
The delays caused by language deprivation are a common problem that is not addressed by the various professionals working with Deaf and hard of hearing infants, toddlers, preschoolers, and their families. Language acquisition is a basic human right to ensure that all Deaf babies and toddlers have full access to acquiring a language and experience the same milestones as their hearing peers.
It is a very basic human right taken for granted by those with full access to language. Please support SB210 and provide a healthy access to language development to all Deaf children in California.
Hello everyone! Deaf children of California need your SUPPORT to end language deprivation. SB 210 demands accountability for language acquisition.
SB 210 is CAD-sponsored bill to mandate language acquisition accountability for all Deaf children between the ages of 0 to 5 to make sure acquire language during their first five years which is instrumental for them to be Kindergarten-ready. Next week the bill will be going to the Senate Appropriations Committee and we need your to send your letters of support. You will find a sample letter you can use to send letters of support to the following SIX members of the Senate Appropriations Committee, send to each one individually. Deaf children need your support!
Please send your letters of support for SB 210 to the Senate Appropriations Committee TODAY or no later than May 27th!!! READ below on how you can make a difference. Please feel free to contact me if you have any question. JulieSmario@gmail.com.
RE: SB 210 (Galgiani): Special Education: Deaf Children: Language Benchmarks – SUPPORT, as amended
Dear Senator ______________:
As a resident of California, I support SB 210 bill to ensure that deaf children arrive at school with appropriate language development and Kindergarten-ready. A significant number of the approximate of nearly 4,000 Deaf children currently between of the ages of 0-5 in California arrive at Kindergarten with inadequate language development necessary to achieve the academic competencies and social emotional growth. This bill would require the state Department of Education to monitor and track the language development of Deaf children, with hearing levels that range from hard of hearing to profoundly deaf, through their IFSP (Individual Family Service Plan) or IEP (Individual Education Plan) from birth to the age of five.
Deaf children have the same ability and capability to learn language as their hearing peers. The ability and right to develop one's language is central to the human experience and a necessary prerequisite to literacy, cognitive, emotional, linguistic, academic, and social growth. Without language, there can be no education. The delays caused by language deprivation are a common scenario for which there are no accountability from the professionals working with the Deaf infants, toddlers, preschoolers, and their families. It is high time that California instills accountability in the education of Deaf pupils and focuses on language development using benchmarks during the child’s first five years to ensure they are Kindergarten-ready for academic success.
For these reasons, we encourage our Senate Appropriations Committee to fully to support SB 210, as amended.Deaf children in California need you!
This is to let you know that the CAD Board is meeting on November 15 at CSUN. The meeting will not be open to the public.
CAD met with communities in Sacramento, Orange County, and San Diego. Those three meetings were great because people expressed concerns, participated in discussion of priorities, and helped the CAD Board formulate our 2015 goals.
So, we will be meeting as a Board to decide our priorities for 2015. After the meeting, we will post our priorities and will have our Statewide meeting in the new year. Be on the lookout for Statewide CAD meeting dates and locations!
CAD responds to Thomas Bone's letter-- NOTHING ABOUT US WITHOUT US-
Dear Mr. Bone:
Thank you for the response to the August 25, 2014 email from California Association of the Deaf. We would like to meet with you and discuss your response to our concerns about your new Parent’s Guide to Hearing Loss.
CAD launched an awareness campaign about the epidemic of language-deprived Deaf children in California a couple of weeks ago. We do not understand why you would not want to work with us who are more knowledgeable about our own issues.
While we understand that your program is mainly focused on 0-5 Deaf children and catered toward their families, we are looking at your program and policies as one of the causes of language-deprived Deaf children (0-5) and students K-12. We are working hard to change this nationwide crisis by making research information & resources and evidence-based principles about ASL and English to the parents of Deaf babies. Your office as a state government entity for providing information and services to Deaf babies and families should be concerned about this crisis.
Because of our shared concerns, the California Department of Education in 2010 funded an all-inclusive parental effort to develop the Parent Resource Guide (PRG). The PRG guide is the most balanced one you can find anywhere in the nation, and it includes a comprehensive section on Hearing Loss. Furthermore, your department added the Parent’s Guide to Hearing Loss to Systems of Care Division/DHCS website yet I cannot find the Parent Resource Guide (PRG) anywhere on your website.
May we remind you of the letter you wrote to Sheri Farinha, CEO of NorCal Services for Deaf and Hard of Hearing back in September 2013 where you wrote:
“…Once we have a comprehensive compilation, clinical staff here, including physicians and audiologists, will review the materials for medical, programmatic and ethical appropriateness, and we will then disseminate these materials to HCCs…Further, we believe that an all-inclusive collection of materials will allow parents to make the most informed decision. (words bolded for emphasis). In CDE’s letter to you on July 28, 2014, they told you two things:
“…(your HCC) packet was not reviewed by important stakeholders;” and “…the information is not consistent with information distributed by CDE.”
CAD supports CDE’s position that the information in both CDE’s and DHCS’s guides are conflicting and will only add to the confusion of new parents. And, more importantly, the information on American Sign Language (ASL) is grossly inaccurate, inappropriate, and incomprehensive.
California’s Early Identification Program is to work with specific entities and stakeholders. Therefore the information should be streamlined, and the goal for all services should be language acquisition. In the case of Deaf babies and their families in California, this means both ASL & English.
Let us outline our issues once again:
1. The MAJOR issue of Deaf babies is not the lack of their hearing but the LACK of a visual language. This issue is already addressed in the Parent Resource Guide (PRG). 2. Thus, as the families’ first contact, the hearing professionals have an ethical responsibility to discuss with the families the importance of both languages, ASL & English. 3. The audiologists are focused only on the speech mechanics of the English language rather than on the acquisition of the English language. 4. The audiologists are NOT qualified to discuss language development with families of Deaf babies. 5. The audiologists are not trained on language development of Deaf babies. 6. Parents are NOT getting unbiased, appropriate, and accurate information about American Sign Language and English.
You as the Chief of California Statewide Programs Section have a greater responsibility to respond to a stakeholder group who has been directly and deeply affected by the hearing and speech policies of the California Audiology Association. The group that worked with you to develop the Parent’s Guide to Hearing Loss has a myopic agenda than the Deaf Stakeholders.
We need to expand the usual and myopic concerns of “hearing loss” to include the fact that most of our DHH children arrive at kindergarten without adequate language and social development, which are symptoms of language deprivation. This is a historical issue because of the viewpoints toward speech development when we must focus on language development instead.
Because we believe you want to be more knowledgeable about the issues facing Deaf babies, let's meet to discuss this further. Working together, we can create systemic change to raise the level of accomplishment for all Deaf and Hard of Hearing babies.
Julie Rems Smario, President Marla Hatrak, Vice President California Association for the Deaf
cc: Assembly Member Ken Cooley Assembly Member Roger Dickenson Assembly Member Jose Medina Senator Jim Beall Senator Ed Hernandez Senator Carol Liu Senator Bill Monning. Senator Mike Morrell Toby Douglas, Director, DHCS, Dr. Hallie Morrow EHDI Director, DHCS Tom Torkalson, California Superintendent of Public Instruction Dr. William Ellerbee, Deputy Director of Public Instruction Scott Kerby, Director, State Special Schools Division, CDE Nancy Sager, Consultant, Office of Education of the Deaf Sheri A. Farinha, acting Chair, California Coalition of Agencies Serving the Deaf and Hard of Hearing Tony Ronco, President, Hands and Voices, CA Chapter
Recently, Thomas Bone, Chief of Statewide Programs Section-Systems of Care Division/DHCS, responded to CAD's letter of concern about California Academy of Audiology's pamphlet, “A Parent’s Guide to Hearing Loss.” We are working on our response- Keep you all posted--
Julie Rems Smario, President Marla Hatrak, Vice President California Association for the Deaf
Dear Ms. Smario and Ms. Hatrak:
I appreciate your taking the time to communicate to me regarding our Newborn Hearing Screening Program informational material.
I apologize for my somewhat tardy reply which in no way is to be inferred that I do not view this issue with the utmost importance. To the contrary, I have spent considerable effort since receiving your email educating myself on the intricacies of your position. You began your email with “We are mystified at the action taken…” I, too, was mystified by the reaction to our producing information meant to help the parents and guardians of children found to have some degree of hearing loss.
First, you were, unfortunately, provided incorrect information. “A Parent’s Guide to Hearing Loss” did not replace the existing Parent Resource Guide. The Newborn Hearing Screening Unit’s (NHSU) informational material was added to the existing materials. Nothing was removed or changed.
We want the materials that our Hearing Coordination Centers (HCC) distribute to the parents, guardians and care givers of infants newly diagnosed with some degree of hearing loss be as comprehensive a set of information as possible. The information packet is meant to provide the parent a solid foundation detailing with all of the myriad avenues we are aware of available to that individual(s) facing a potentially unique and new set of decisions to be made on behalf of their infant.
NHSU does not have a preference or a bias for any avenue the parent elects to pursue on behalf of their child. However, NHSU does have a defined responsibility to our citizens. One aspect of that responsibly dictates that our HCCs provide the parent with unbiased information regarding their infant’s hearing loss. We believe this information should provide the parent with a basic understanding of what hearing loss can mean for their child as well as a comprehensive list as possible of the resources available to that parent to thereby allow the parents to decide the direction they believe might be best for their child.
We believe that with the inclusion of “A Parent’s Guide to Hearing Loss” with the extant informational materials we provide a more comprehensive foundation for parent decision making than was previously the case.
We removed nothing. We changed nothing. Moreover, as stated, we in NHSU subscribe to no single approach; we do not support any one option. That is not our role. We do support the right of the parents to have as much information as possible to help them begin their own research and quest for the best possible approach for their child and their family.
This, then, is the background for adding our “A Parent’s Guide to hearing Loss” to the materials distributed by our HCC contractors. It is predicated solely on wanting to provide the best and most comprehensive information to our fellow citizens. I hope you see that we share your passion and dedication to this group of fellow Californians.
Thomas W. Bone, Chief Statewide Programs Section Systems of Care Division/DHCS 1515 K Street, 4th Floor Sacramento, California 95814
The CAD board recently sent a letter to the Federal Communications Commission sharing their concern about the lack of full and barrier-free access to video mail when using videophones. Please read the PDF attachment below!
Here are some of the pictures taken at the statewide meeting held at the UCSD Moores Cancer Center in San Diego on August 16, 2014! We were well-represented throughout all generations- from the young to the senior citizens!
CAD sent a letter earlier this month of August to Dr. Thomas Bone, Chief of Statewide Programs Section, in which we expressed concern about their new pamphlet titled "A Parent's Guide to Learing Loss" that was developed without input from any of the Deaf community. It also duplicated and contradicted the pamphlet that was prepared by the California Department of Education that was developed with input from all stakeholders throughout California.