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Statewide

01
Nov

November 15 CAD Meeting for Executive Board only (closed meeting)

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This is to let you know that the CAD Board is meeting on November 15 at CSUN. The meeting will not be open to the public.

CAD met with communities in Sacramento, Orange County, and San Diego. Those three meetings were great because people expressed concerns, participated in discussion of priorities, and helped the CAD Board formulate our 2015 goals.

So, we will be meeting as a Board to decide our priorities for 2015. After the meeting, we will post our priorities and will have our Statewide meeting in the new year. Be on the lookout for Statewide CAD meeting dates and locations!

Thank you!

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02
Oct

Our Response to Bone's Letter

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CAD responds to Thomas Bone's letter-- NOTHING ABOUT US WITHOUT US-

 

 

Dear Mr. Bone:

Thank you for the response to the August 25, 2014 email from California Association of the Deaf.  We would like to meet with you and discuss your response to our concerns about your new Parent’s Guide to Hearing Loss.

CAD launched an awareness campaign about the epidemic of language-deprived Deaf children in California a couple of weeks ago. We do not understand why you would not want to work with us who are more knowledgeable about our own issues.

While we understand that your program is mainly focused on 0-5 Deaf children and catered toward their families, we are looking at your program and policies as one of the causes of language-deprived Deaf children (0-5) and students K-12. We are working hard to change this nationwide crisis by making research information & resources and evidence-based principles about ASL and English to the parents of Deaf babies. Your office as a state government entity for providing information and services to Deaf babies and families should be concerned about this crisis.

Because of our shared concerns, the California Department of Education in 2010 funded an all-inclusive parental effort to develop the Parent Resource Guide (PRG). The PRG guide is the most balanced one you can find anywhere in the nation, and it includes a comprehensive section on Hearing Loss. Furthermore, your department added the Parent’s Guide to Hearing Loss to Systems of Care Division/DHCS website yet I cannot find the Parent Resource Guide (PRG) anywhere on your website.

May we remind you of the letter you wrote to Sheri Farinha, CEO of NorCal Services for Deaf and Hard of Hearing back in September 2013 where you wrote:

“…Once we have a comprehensive compilation, clinical staff here, including physicians and audiologists, will review the materials for medical, programmatic and ethical appropriateness, and we will then disseminate these materials to HCCs…Further, we believe that an all-inclusive collection of materials will allow parents to make the most informed decision. (words bolded for emphasis).
 
In CDE’s letter to you on July 28, 2014, they told you two things:

“…(your HCC) packet was not reviewed by important stakeholders;” and
“…the information is not consistent with information distributed by CDE.”

CAD supports CDE’s position that the information in both CDE’s and DHCS’s guides are conflicting and will only add to the confusion of new parents. And, more importantly, the information on American Sign Language (ASL)  is grossly inaccurate, inappropriate, and incomprehensive.

California’s Early Identification Program is to work with specific entities and stakeholders. Therefore the information should be streamlined, and the goal for all services should be language acquisition. In the case of Deaf babies and their families in California, this means both ASL & English.

Let us outline our issues once again:

1.    The MAJOR issue of Deaf babies is not the lack of their hearing but the LACK of a visual language. This issue is already addressed in the Parent Resource Guide (PRG).
2.    Thus, as the families’ first contact, the hearing professionals have an ethical responsibility to discuss with the families the importance of both languages, ASL & English.
3.    The audiologists are focused only on the speech mechanics of the English language rather than on the acquisition of the English language.
4.    The audiologists are NOT qualified to discuss language development with families of Deaf babies.
5.    The audiologists are not trained on language development of Deaf babies.
6.    Parents are NOT getting unbiased, appropriate, and accurate information about American Sign Language and English.

You as the Chief of California Statewide Programs Section have a greater responsibility to respond to a stakeholder group who has been directly and deeply affected by the hearing and speech policies of the California Audiology Association. The group that worked with you to develop the Parent’s Guide to Hearing Loss has a myopic agenda than the Deaf Stakeholders.

We need to expand the usual and myopic concerns of “hearing loss” to include the fact that most of our DHH children arrive at kindergarten without adequate language and social development, which are symptoms of language deprivation. This is a historical issue because of the viewpoints toward speech development when we must focus on language development instead.

Because we believe you want to be more knowledgeable about the issues facing Deaf babies, let's meet to discuss this further. Working together, we can create systemic change to raise the level of accomplishment for all Deaf and Hard of Hearing babies.


Julie Rems Smario, President
Marla Hatrak, Vice President
California Association for the Deaf

cc:
Assembly Member Ken Cooley
Assembly Member Roger Dickenson
Assembly Member Jose Medina
Senator Jim Beall
Senator Ed Hernandez
Senator Carol Liu
Senator Bill Monning.
Senator Mike Morrell
Toby Douglas, Director, DHCS,
Dr. Hallie Morrow EHDI Director, DHCS
Tom Torkalson, California Superintendent of Public Instruction
Dr. William Ellerbee, Deputy Director of Public Instruction
Scott Kerby, Director, State Special Schools Division, CDE
Nancy Sager, Consultant, Office of Education of the Deaf
Sheri A. Farinha, acting Chair, California Coalition of Agencies Serving the Deaf and Hard of Hearing
Tony Ronco, President, Hands and Voices, CA Chapter


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02
Oct

Bone's Response to "Parent's Guide to Hearing Loss" Concerns

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Recently, Thomas Bone, Chief of Statewide Programs Section-Systems of Care Division/DHCS, responded to CAD's letter of concern about California Academy of Audiology's pamphlet, “A Parent’s Guide to Hearing Loss.” We are working on our response- Keep you all posted--

 



Julie Rems Smario, President
Marla Hatrak, Vice President
California Association for the Deaf

Dear Ms. Smario and Ms. Hatrak:

I appreciate your taking the time to communicate to me regarding our Newborn Hearing Screening Program informational material.

I apologize for my somewhat tardy reply which in no way is to be inferred that I do not view this issue with the utmost importance. To the contrary, I have spent considerable effort since receiving your email educating myself on the intricacies of your position. You began your email with “We are mystified at the action taken…” I, too, was mystified by the reaction to our producing information meant to help the parents and guardians of children found to have some degree of hearing loss.

First, you were, unfortunately, provided incorrect information. “A Parent’s Guide to Hearing Loss” did not replace the existing Parent Resource Guide. The Newborn Hearing Screening Unit’s (NHSU) informational material was added to the existing materials. Nothing was removed or changed.

We want the materials that our Hearing Coordination Centers (HCC) distribute to the parents, guardians and care givers of infants newly diagnosed with some degree of hearing loss be as comprehensive a set of information as possible. The information packet is meant to provide the parent a solid foundation detailing with all of the myriad avenues we are aware of available to that individual(s) facing a potentially unique and new set of decisions to be made on behalf of their infant.

NHSU does not have a preference or a bias for any avenue the parent elects to pursue on behalf of their child. However, NHSU does have a defined responsibility to our citizens. One aspect of that responsibly dictates that our HCCs provide the parent with unbiased information regarding their infant’s hearing loss. We believe this information should provide the parent with a basic understanding of what hearing loss can mean for their child as well as a comprehensive list as possible of the resources available to that parent to thereby allow the parents to decide the direction they believe might be best for their child.

We believe that with the inclusion of “A Parent’s Guide to Hearing Loss” with the extant informational materials we provide a more comprehensive foundation for parent decision making than was previously the case.

We removed nothing. We changed nothing. Moreover, as stated, we in NHSU subscribe to no single approach; we do not support any one option. That is not our role. We do support the right of the parents to have as much information as possible to help them begin their own research and quest for the best possible approach for their child and their family.

This, then, is the background for adding our “A Parent’s Guide to hearing Loss” to the materials distributed by our HCC contractors. It is predicated solely on wanting to provide the best and most comprehensive information to our fellow citizens. I hope you see that we share your passion and dedication to this group of fellow Californians.


Best regards,


Thomas W. Bone, Chief
Statewide Programs Section
Systems of Care Division/DHCS
1515 K Street, 4th Floor
Sacramento, California 95814

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04
Sep

CAD Complains to FCC About Videomail

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The CAD board recently sent a letter to the Federal Communications Commission sharing their concern about the lack of full and barrier-free access to video mail when using videophones. Please read the PDF attachment below!

fcc9.3.pdf

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23
Aug

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